Lymphedema Speaks is a collection of stories told by individuals who have, or are at risk of, lymphedema.

The goals of Lymphedema Speaks are:

• to advocate, through our shared experiences, for improvements in lymphedema education, care and quality of life.
• to share our collective experiences so we may inform and assist each other.

If you have lymphedema, Lymphedema Speaks is a place where you can share your own story, and where you can read the stories of kindred spirits. We welcome your story, whether it tells of frustration, inspiration, or something in between.

If you are currently facing cancer treatment, the stories you find in Lymphedema Speaks will show you why you must become your own best advocate for the education and care that will help you understand and minimize your lymphedema risk.

If you are a surgeon, physician, or other healthcare provider, Lymphedema Speaks will bring you insights into the lymphedema patient experience that you are unlikely to discover in any clinical setting.

Forewarned is forearmed: For those with, or at risk of lymphedema, our stories will help each other and those who come after us. For those charged with our care, our stories will alert you to the challenge of a more cohesive, informed lymphedema community that insists you do your part to improve lymphedema education, care, and quality of life.

We invite all visitors to share in the lymphedema experience, through the telling and reading of our stories.

To tell your lymphedema story, start by clicking Your Story .